Guillain-Barre (gee-YAH-buh-RAY) syndrome is a condition in which the body’s immune system attacks the nerves. It can cause weakness, numbness or paralysis.
Weakness and tingling in the hands and feet are usually the first symptoms. These sensations can quickly spread and may lead to paralysis. In its most serious form, Guillain-Barre syndrome is a medical emergency. Most people with the condition need treatment in a hospital.
Guillain-Barre syndrome is rare, and the exact cause is not known. But two-thirds of people have symptoms of an infection in the six weeks before Guillain-Barre symptoms begin. Infections can include a respiratory or a gastrointestinal infection, including COVID-19. Guillain-Barre also can be caused by the Zika virus.
There’s no known cure for Guillain-Barre syndrome. Several treatment options can ease symptoms and help speed recovery. Most people recover completely from Guillain-Barre syndrome, but some serious illnesses can be fatal. While recovery may take up to several years, most people are able to walk again six months after symptoms first began. Some people may have lasting effects, such as weakness, numbness or fatigue.
Guillain-Barre syndrome (GBS) / Miller Fisher Syndrom (MFS) / Chronic inflammatory demyelinating polyneuropathy (CIDP)
BACKGROUND: I was diagnosed with Guillain-Barre syndrome (GBS) / Miller Fisher Syndrome (MFS) / Chronic inflammatory demyelinating polyneuropathy (CIDP) in April 2014 which I caught from a respiratory virus, which later developed into GBS/MFS/CIDP.
I woke up one morning in early April 2014 and had double vision, photophobia (eyes very sensitive to light) and incredible pain throughout my body (this was the CIDP). This very quickly developed into paralysis down my right side, and I had breathing issues and had trouble swallowing. Eye paralysis followed – it was terrifying.
CIDP, which is sometimes called chronic relapsing polyneuropathy, is caused by damage to the myelin sheath (the fatty covering that wraps around and protects nerve fibres) of the peripheral nerves. My own immune system had basically attacked my nervous system.
It took almost 2 years for me to be able ‘self sufficient’ having had to learn to walk again. My balance is shot and going down stairs is very difficult – even now. I suffer from bouts of acute tiredness if I over do things – I build web sites, and if I have to concentrate quite intensely – sometimes I lose my speech, and feel like my head is going to ‘blow up’.
I found MMS / CDS just 2 weeks ago and in the short time that I have been taking it, my balance has improved 100%, and I feel generally so much better.
In the last 2 weeks I have not lost my speech – which is a MIRACLE.
I know that MFS / GBS / CIDP is rare and I am new to MMS / CDS, but I hope that this short testimony will help others.