Complex Autism Case Shows Multi-System Improvements
The following testimonial is excerpted from pages 419-422 of Healing the Symptoms Known as Autism, 2nd Edition by Kerri Rivera, published in 2014.
The book outlines a protocol in which chlorine dioxide is a key component. More recent editions have since been released with updated information.
A link to the full book in PDF format is provided at the bottom of this page.
My now 8-year-old daughter was dx with autism at 18 months old. Started GF/ CF diet and started with a DAN! She slowly made progress with speech, had a few words, a few 2 and 3 word sentences, and despite having autism, she was always a happy, calm, sweet little girl. Shortly after her 3rd birthday, she “changed.’ She became more of a Jekyll / Hyde personality, and all progress in speech and improvements in eye contact and sociability started to fade. Seemed like everything we did was just like yo-yoing back and forth between improving, and then crashing yet once again.
Last year at this time, we had just left the doctor we had been taking her to. For years she was on antivirals, antifungals, antibiotics on and off, SSRI’s, Tenex, and when her violent SIB had become so bad the second year into treatment with him, he put her on Abilify. SSRI’s and the Abilify did nothing for her except make her behave worse. Neither did any of the other things he had her on. The first year she was doing pretty good, but possibly because the antivirals were acting as an anti-inflammatory. She always had chronic constipation with loose stools/ diarrhea. Nothing helped that either. We finally left that doctor who yelled at us in his office for 20 min straight, in front of my daughter, because he did not like that I had been challenging him on all of this for the past 6 months. I was no longer going to let him put the blame on us and everyone else… that her ABA and speech therapists didn’t know what they were doing, and telling us she acted out this way because we didn’t know how to give proper time outs or how to correctly give “pep talks” at bedtime. I was convinced that she had PANDAS/PANS and/or parasites that were causing her ever increasing SIB, loss of all progress she had made in speech over the past 4 years, and the fact that she had not grown in 4 years…did not gain 1 pound, feet did not grow at all, and she only grew 1/2 inch in height in that 4 year span. We had taken her to a very well respected endocrinologist the previous summer who ran all the tests. Could find nothing wrong as to why she wasn’t growing. But he decided to put her on HGH anyway. Thankfully, we left and decided not to give her the HGH. We also took her to one of the best Ped Psychiatric doctors at UCLA who specialized in autism that summer. He observed her, her SIB happened right there in his office for him to see. He said her SIB is coming from pain, discomfort, something medical going on inside, most likely stemming from her gut. He suggested we get her scoped upper and lower. So we did. The only thing that came up was on the upper endoscopy, and that was that she had esophageal gastritis. So the GI dr gave her Nexium.
All the parasite stool tests we had done over the years had always come back neg except for one at age 3 came back with Giardia. But that was it. So last January, when we had finally left that her doctor of 3 years, her liver AST and ALT were at 130 and 135, her Creatinine (kidneys) were severely elevated at a dangerous level, she now had hypothyroidism, and after testing her cortisol thru blood and saliva we discovered she was barely making any at all. She had dark circles under her eyes, grinding her teeth for 3 years now, and agitated beyond belief ALL the time. Mind you when we started with him 3 years prior, her thyroid, liver, and kidneys were all in normal range. She did have dark circles, many many food allergies, some SIB, but nothing compared what we were dealing with now, or what was to come.
So now, what to do. We took her to a very highly recommended Pediatric GI in Los Angeles who was very nice. Listened to what we had to say. Ran the most sensitive and comprehensive stool analysis. Came back with nothing at all. Then took her to the head of pediatric Infectious Disease at Cedars Sinai. She obviously had her mind made up before she even walked in the door. She saw the word AUTISM on my daughter’s chart, and that was it. I showed her every blood and stool test, explained the not growing at all for 4 years despite all the endocrinology labs said everything related to growth was in normal range, her severe SIB. She said to us…”I know you want to help your child. You want to find something “medical” that has caused her autism so you can fix it. But the truth is, your daughter has autism. You need to accept that, and take her to a pediatric psych dr who can help her with these SIB’s. There are lots of meds that can help her be calmer.” Had she not listened to one damn word I told her!!! All the meds we had tried in the past did nothing, already took her to a psych dr who specialized in autism telling us something internal was wrong. She would not run any blood tests, or any other kind of Infec Disease tests. So with that, my husband, my sister, and I completely dumbfounded started to walk out. The dr then had the nerve to say…”She hasn’t been vaccinated since 18 months (she was 7 here) Let’s get her caught up right now before you go. I can give her 6 vaccines today.” I looked at her and said you have got to be crazy! I am not giving my very sick child vaccines full of the poisons that did this to her.”
So a month later we started with doctor who “gets it.” Who listens, and treats parents with respect. Values their opinions. And the networking I had been doing for the past 6 months on a few different bio-med autism groups with other moms was paying off. The moms are the ones who KNOW!!! That’s how I found my daughter’s current doctor and how I found Dr Maile Pouls last June to help her with nutritional and metabolic healing. Dr Pouls ran a $100, 24 hour collection urine analysis, and we found out she had severe malabsorption, Ph was too Alkaline, she was catabolic, extremely electrolyte and mineral deficient, severely Vit C and D deficient, and had severe bowel toxicity. Working with Dr Pouls and her new doctor lead them to suspect parasites/worms. I was encouraged to look into mms, but of course I had heard nothing but bad things like it’s bleach. I was very hesitant to try it, but I researched it, and sought out other moms on Facebook who were doing it. The toxins from the parasites had completely taken over her body and brain. She was SIB almost all day, every day by now. It was pure hell. We thought we were going to lose our minds it was so bad. We had stopped taking her anywhere but school and dr’s appointments for the past 2 years because she would just suddenly out of nowhere, for no reason, violently freak out and there was no way to help her calm down. Her doctor said she’s so toxic, and her body is so sick that she can’t detox. That the mms will not only help kill, but will neutralize the toxins and help her calm down. So we started mms, and I could not believe how much calmer, happier, and more present she was in just a week. MMS is literally saving her life, and bringing her back to us. Before starting mms, we did just parasite meds like Alinia and Mebendazole. The parasite meds alone did not help her, even though she was dumping worms, but she was still completely psychotic, and getting more crazy and manic every day. Since starting mms she has dumped hundreds of worms, some 10-12” long, ascaris eggs, TONS and TONS of the shedded skins of the worms, tons of liver flukes, and hundreds of tapeworm segments. We had not done any PP yet. This had all been with MMS only! We actually started Albendazole for treating tapeworm about a month ago and saw immediate improvements with it. It really seems like this is her biggest beast right now to deal with.
These are her labs from before MMS, and after starting MMS:
2/7/2012 – one month after leaving scumbag dr of 3 years
AST = 79 ALT = 108 Creatinine = 1.24 EOS = 11.2 Sed Rate = 9 ~ Started MMS 11/23/2012 ~
12/4/2012
AST = 73 ALT = 64 Creatinine = 1.32
1/15/2013
AST = 61 ALT = 60 Creatinine = 1.30
2/27/2012
AST = 51 ALT = 42 Creatinine = 0.92 EOS = 5.1 Sed rate = 12 Ref Range for AST is [15 – 46] ALT is [3 – 35]
Ref Range for Creatinine (kidney) is [0.60 – 1.20] Shows how well kidneys are working. Anything close to or over the 1.20 is considered to be of serious concern
Ref Range for EOS (eosinophils) is [0.00 – 3.0] * High EOS are always seen with parasites
Ref Range for Sed Rate (marker for inflammation) is [0 – 10]
Her doctor said her Sed Rate is likely high because when killing off pathogens and detoxing, inflammation will go up temporarily.
So I say never give up. Don’t listen to doctors who don’t listen to you. Kerri, thank God you saw those bottles of MMS at the clinic that day and asked what they were. And that you bought some out of curiosity and tried it. And that you selflessly have taken what you’ve learned and experienced, and shared it. Given so much of your time to help others, to help heal and recover their kids. You are truly an amazing person. We finally have the answers to our daughters autism after almost 7 years of numerous doctors and specialists, so many tests, so much money and valuable time wasted… and now we finally have real hope…real results. We know without a doubt she is going to get healthy, which will in turn
give her the happy joyful life back that she once had before she got “autism.” ~
xoxo
PANDAS Symptoms and Chronic Issues Resolved
The following testimonial is excerpted from pages 425-426 of Healing the Symptoms Known as Autism, 2nd Edition by Kerri Rivera, published in 2014.
The book outlines a protocol in which chlorine dioxide is a key component. More recent editions have since been released with updated information.
A link to the full book in PDF format is provided at the bottom of this page.
Drum roll….
I have been dying to share…
Been off MMS for a few weeks…AND HOLY SMOKES we are ALLLLL GOOD!!!!!!!!!!!!!!!!!
Summary…
My daughter—PANDAS—MAJOR sleep issues—fluctuate between diarrhea and constipation
Me—Acne—horrible—and nail fungus
ALL GONE. ALL.
NOBODY could EVER, ever, ever tell me why I broke out so much esp. with our squeaky clean diet.
First PP, OMG it was REALLY bad—worst ever—and became cystic—painful— so for SURE worse before better in my case BUT believed in protocol and KEPT GOING.
By month 4, GONE and yet to return
Fungus—gone in month 1, never to return
My daughter:
Well, you know, AMAZING!!!!!
YOU, Kerri, YOU helped me figure out FINALLLLLY after a zillion docs, WHY MY KID could NOT SLEEP! EVER! 7 LONG years… long long—exhausting years—and it was PARASITES NO DOUBT in my mind! Month 1 of PP, literally like a light switch, SLEEPING —falling asleep ON HER OWN—(not with a circus routine to “get her to sleep”) AND staying asleep ALL NIGHT LONG! UNREAL! This is HUGE!
AND bye bye PANDAS (Silver/Aloe nipped it, MMS maintained her gains, BEAUTIFULLY!) SO I do believe in our Silver Aloe protocol for PANDAS, 100% worked for us! AND MMS. Both.
AND since OFF MMS, my daughter is 100% pooping NORMAL—OMG first time in her WHOLE LIFE!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! (on MMS it was still fluctuating…) AND she is eating things she would have NEVER ever touched! EVER! Raw veggies, nuts, trying EVERYTHING I make… unreal… this is HUGE too… the “healthier” you get, your tastes DO change… and one becomes less “picky”
I have learned that SOME probiotics can literally throw a child into a PANDAS rage—and also brought back MY symptoms—literally within 12 hours of consuming. (Like “Regarding Caroline” posted) This clearly happened to us. Mental note: NOT all prob’s are appropriate for everyone. We react to fermented food—so I am going to experiment with no prob’s and with THeralac __ONLY THeralac BTW
Now,
We are back to silver/aloe, daily, as prevention
We will still take DE (prevention)
Vit D3
Trace Mineral Drops
Enemas as needed
AND I am going to go BACK to the herbs for 3 months around full moon “just in case”—
I CANNOT WAIT to meet you in person, THANK YOU, and share our story with EVERYONE that will “hear me”.
Again, my daughter did not have ‘autism’ per se, but autoimmune issues, meaning that, perhaps, her treatment protocol is ‘shorter’ then someone who is “more sick’ etc. if that makes sense.
We also did a boat load of work prior to this. Meaning diet in place, for instance, for 4 years already—so healing began. This was the final layer for us. The frosting on the cake!!!!!
I have 2 brand new bottles of MMS in my cabinet 🙂 AND will ALWAYS have it on stock!
With MUCH LOVE and respect to you Kerri. -Jeni, IL, USA
ATEC Score Dropped from Over 100 to Single Digits
The following testimonial is excerpted from pages 428-429 of Healing the Symptoms Known as Autism, 2nd Edition by Kerri Rivera, published in 2014.
The book outlines a protocol in which chlorine dioxide is a key component. More recent editions have since been released with updated information.
A link to the full book in PDF format is provided at the bottom of this page.
Drum roll please…….my son is 17 years old. He’s been on mms for 5 months now, I’m so excited I don’t even know, could it be 6? I think we started late July.
He started with a 63…….he is now a 7. He went from 63 to 25 in just a few weeks, then a 13 a couple months later, now a 7. I feel like I’m cheating every time. I go back and look, argue with myself, nitpick….but whether he’s a 5, 7 or 9, it’s nothing short of a miracle because just one year ago, he was WAY over 100. The ATEC is not perfect, not even close. There are things that the ATEC does not show. All that is true, but this is incredible improvement that no doctor I know would have ever been able to accomplish. Been there, did that, spent the 425K+.
And no, it’s not just MMS, but that has been the main treatment and everything else we do supports MMS and general health because I believe that in the end, it’s a battle between your immune system…and all that’s attacking it. We are winning and I sure do wish they would STOP CALLING IT AUTISM. That alone hurts so many.
Here’s a little background on my son: Matthew was very high functioning from age 6-12. That was after diet since 3, floortime play therapy, some aba, AIT, IVIG, chelation for a year, OIG, years of infusions of glutathione, vitamin C, B-com, etc…immune stuff. Then he did very well GFCF ages 6-12, ran track (very well), 2nd degree black belt, boxing lessons, etc….Then puberty hit, and what I did not know about, Lyme and co-infections RAGED, and for around 3 years, I lost him cognitively, worse, worse, worse. At 15, he was like an advanced Alzheimer’s patient, ADVANCED, he had lost ALL short-term memory, it was horrible, he struggled to think and could not.
He became more and more violent; choking me, kicking me, did I say he was a blackbelt? Even though he lost everything cognitively, like the ability to answer a question, those karate skills popped back into his head and he nearly killed me…. really close a couple times.
That was a year ago when his ATEC was over 100. So, here’s what worked: 1. Low amylose diet helped with the constant urinating. (he acted like a diabetic and had 14 of 16 PANDAS symptoms so auto-immune) 2. Biofeedback helped calm him some. 3. Cholestyramine helped him psychologically – I could see him clear up mentally in minutes. (chemical/mold/dust sensitivities big time) By this time, his doc had him on Ketamine for pain. 4. PEMF (pulsed electromagnetic field device) stopped the pain in 6 weeks, got him off of Vicodin, which was not working anyway at double doses, and all the Ketamine. I hated drugging him. Got him off the psych drugs over 6 months time. Then he got a lot better but communication did not really come around until 5. MMS. BAM. Big improvements in communication and PERSONALITY. With MMS, even his laugh changed to a typical sounding teenager’s laugh, and for the first time in years, he can sit still and stop pacing, pacing pacing….the parasites were eating him alive….and now more recently, I know 6. Hydro-colonics is taking us to another level of clear communication. Now there’s lots of spontaneous language.
I write things on Facebook so that I can remember and maybe write a book one day. I don’t care how bad things get, believe me, your kids can get better and it’s amazing, they really do store up all this info that you didn’t think was there. It is there, and they will share it with you one day.
I hope one day Matthew can share his perspective with others. It’s just that it has taken a very long time for us to help him understand that the things he did back then were not in his control so I’m careful not to talk about it. For months he would out of the blue apologize and feel terrible, over and over. Then there’s memories of his dad losing it also….protecting me.
Thankfully, Matthew has blacked out or forgotten a lot of it. He did say he remembers being locked in his room. We had to turn the lock around and sometimes lock him in there. Bad memories. We were all traumatized. But not anymore. He is a different person today but he’s always been the sweetest boy I know. I knew that, even back then. One day, he’ll probably talk more about it.
PANDAS Symptoms Improve with MMS and Protocol
The following testimonial is excerpted from page 434 of Healing the Symptoms Known as Autism, 2nd Edition by Kerri Rivera, published in 2014.
The book outlines a protocol in which chlorine dioxide is a key component. More recent editions have since been released with updated information.
A link to the full book in PDF format is provided at the bottom of this page.
Today is a wonderful day already.
My daughter got up to her alarm, took a shower without help, got dressed, packed her lunch, woke up her sisters, and is now getting breakfast for everyone ready. It amazes me how independent she is becoming, and how much our life is changing because of her new independence.
She is 10 and we started MMS in Sept. She had done 5 PP and following the PANDAS protocol the last week after emailing Kerri Rivera last weekend with concerns about eye fluttering.
She is also on Fish oil, garlic, Magnesium, and GABA.
Before she was very hyper, spacey, a lot of language, but not using it correctly. She was extremely impulsive, and would fixate on object to play with and ignore others.
Now she does reciprocal play, she talks back and forth with her friends, she cracks jokes that are now actually funny. She is focused with her school work and not hyper – except in typical situations.
This week my husband forgot to pick her up to take her to therapy and she came to my classroom to tell me how irresponsible he was, and that she was disappointed in his inconsistent behaviors.
I had to laugh, but at the same time I was so proud as I explained to her the whole situation because we where having a fabulous discussion about life.
She is doing so well.
Thank you to all of you who have restored some of my hope that there is a cure.
PANDAS Symptoms Improve in Three Weeks
My son was recently diagnosed with Pandas, though he’s had symptoms for years.
His Pandas doctor prescribed him antibiotics for two weeks. We did see improvements but the antibiotics made him depressed. So we stopped and I put him on MMS protocol 1000 bottle method.
He has improved dramatically and it has only been 3 weeks. Anxiety, melt downs, OCD, sleep anxiety, anger – all almost completely gone.
It is a miracle for him and our family!
PANDAS Symptom Relief and Speech Progress with MMS
The following testimonial is excerpted from page 431 of Healing the Symptoms Known as Autism, 2nd Edition by Kerri Rivera, published in 2014.
The book outlines a protocol in which chlorine dioxide is a key component. More recent editions have since been released with updated information.
A link to the full book in PDF format is provided at the bottom of this page.
MMS Works!
It’s my number one pathogen fighter. Our family continually suffers from strep, my son specifically from PANDAS. MMS remains and continues to keep our strep symptoms at bay.
I have used everything for our bacterial flares (Abx, herbals, supplements, even homeopathics) and nothing has worked so effectively like MMS does for us.
Recently I changed over to the HCl activator and within a few days we heard my severely apraxic son’s first word, “Mama.”
It’s been just over a month on the HCl activator and he is now stringing two words together!
MMS is a huge part of our recovery protocol. I feel relief beyond measure that I found a post on MMS and decided to try it, and mostly I’m immensely grateful to Kerri for putting the MMS protocol together and for her love for our kids.
